Monday, August 25, 2014

All is Well

Dear Family and Friends,


All is well with Joseph! The initial concern of possibly needing an additional surgery to correct his hips is gone. We received word from the orthopedic surgeon that everything looks solid for Joseph's hips being in socket. Praise God.

Day to day with Joseph, he is becoming more and more mobile! Recently he began rolling all over the place and has even begun pivoting around on his stomach. His ability to crawl his hopefully soon to follow! We are very encouraged by this because after he got out of his spica cast (which he wore for ten weeks) he basically was a newborn again as far as his core strength was concerned. To see him now moving like he is has become very encouraging for Rachel and I.

Please continue to pray for-

- Continuing development of his fine and gross motor skills given all the surgeries that set him back
- Continued weight gain
- Strength for Rachel and I as we continue to have a very regimented feeding schedule with Joseph to attain his calorie goal which is vital to his heart output, weight gain, and overall development.

St. Joseph, pray for us.
St. Francis, pray for us.

In gratitude,
Nick & Rachel


Tuesday, July 8, 2014

You put your right hip in...

Dear family and friends,

Today's appointment went well...thank you for the prayers! There were a couple of different tests that were done. First, the radiologist consulted with Joseph's orthopedic surgeon to read a hip ultrasound and together they thought that everything looked pretty good with his right hip. After that scan, the doctors also wanted a CT scan to provide more detailed images. As part of general procedure, Joseph was scheduled for general anesthesia, including intubation. As it turned out, the small dose of sedative that they gave Joseph just to take him back for anesthesia ended up being sufficient for the whole procedure. Praise God! The nurse who was assisting with things said that he just held her hand the whole time and did great. What a trooper! Because he didn't need general anesthesia, we were able to come home fairly quickly and recovery was a snap. We won't hear the results from the CT yet for a couple of days but the orthopedic surgeon did earn us that another surgery was still likely, given that the joint cups weren't very well formed. Thankfully, this sounds like something we'll be able to address a little ways down the road. Thanks again for the prayers and please keep them coming. We know that God is at work in all of this.

In gratitude,
Nick and Rachel

Monday, July 7, 2014

Prayers for Tuesday's Appointment

Dear Family and Friends,

Please pray for us tomorrow morning (Tuesday).  At 7am, we will be meeting with Joseph's orthopedic doctor and two radiologists.  They will be taking another look at Joseph's right hip to see whether it is truly in place or whether further treatment will be necessary.  We are fervently praying that everything will look as it should.  Please pray with us and we will keep you posted.

St. Joseph, pray for us.
St. Francis, pray for us.

In gratitude,
Nick and Rachel

Monday, June 23, 2014

Update on Hips

Dear Family and Friends,

It has been a wonderful week and a half of freedom!  Every day, Joseph seems to be using his legs more and becoming stronger and more comfortable. The physical therapists are impressed with his progress and so are we!  It must be those prayers!  

However, Joseph never lets us get too comfortable...we received a difficult phone call at the end of last week.  One of the scans that was done showed that his right hip might not quite line up the way the doctors would like.  Apparently, two different radiologists read the scan and they read it differently. One thought that everything looked fine while the other thinks there's an issue.  The plan is to do a conference ultrasound early next month, with Joseph's orthopedic surgeon and both radiologists present.  From that appointment, they will determine if Joseph will need further surgery or procedures.  
Please pray:
- Pray that the upcoming scan will reveal Joseph's hips are in alignment
- Pray for Joseph to continue to continue to gain strength to be able to sit, crawl, and walk.
- Pray for patience and endurance during our string of 14 appointments in the next 2 months.
- Pray for God's will to be done.

St. Joseph, pray for us.
St. Francis, pray for us.

In gratitude,
Rachel, Nick, and Joseph

Wednesday, June 11, 2014

Free!

Joseph's cast is off!!! He is stiff and sore, but excited to be able to move his body and legs again. It's so exciting to watch him re-discover movement and so wonderful to be able to snuggle him close without fiberglass between us. We start physical therapy on Friday and are scheduled for a follow-up appointment at the hospital in a month to see how things are looking and if further treatment is needed. Thank you so much for your prayers... today, please join us in a prayer of joy and thanksgiving!

Tuesday, May 27, 2014

3...2...1...Cast off!


Dear Family and Friends,

At Joseph's orthopedic appointment last week, the doctors gave us a definitive date for the spica cast to come off...Wednesday, June 11th! The day can't come fast enough! Unfortunately for Joseph's little furry friend here in the picture below, we aren't sure if the same can be said for his little spica cast. We are still in negotiation with the doctors to get his cast off :)

As for prayers, please pray for -

- No complications with his hips in these final stages or in the removal of the cast
- For Joseph to travel comfortably as we head to Pittsburgh and for Aunt Bethany and Uncle Mike on     their wedding day
- For the weather to not go above 80 degrees until June 12th :)

St. Joseph, pray for us.
St. Francis, pray for us.

In gratitude,
Nick & Rachel


Joseph "standing" with his Spica Bear

Sunday, May 4, 2014

Four Weeks Down

Dear Family & Friends,


Joseph playing with his new light-up water toy
Four weeks down, six weeks to go: we're smack in the middle of this whole spica cast journey.  An appointment this past week confirmed that things look good, but that it will be at least six more weeks until Joseph's cast can come off.  Sometimes we feel like we've got it down pat, while other days were not sure how were going to make it. Mostly, everything just takes longer, is more complicated, and requires A LOT of patience. For example, when Joseph gets sick (which thankfully doesn't happen nearly as often as it used to), it's quite the lengthy production: First, it's the challenge of positioning Joseph so that the cast stays clean... which usually means that EVERYTHING else ends up dirty. Then, the blankets, pillows, bean bag, etc which have been proping him up must all be washed.  We have to change Joseph's clothes, balancing him on one knee and awkwardly stretching clothes to go over his cast.  The cast must be inspected and cleaned if necessary, but it doesn't clean up very well.  And then we're back to feeding, since he's lost important calories toward his daily quota.  This is a glimpse into spica life, but we figure that if Joseph can handle it, then so can we.

Of course, there are also many blessings and happy moments, and just looking back at where we've been makes us thankful to be right here, right now, with a growing baby in a spica cast.  Please pray:
- for healing of Joseph's hips
- for an increased appetite and desire to eat
- for patience for all three of us

Thank you so much for your prayers and for sticking with us through everything!

St. Joseph, pray for us.
St. Francis, pray for us.

In gratitude,

Nick and Rachel